News

Phantom Limb Pain Live Webinar

Phantom Limb Pain Live Webinar aims to help people to understand more about Phantom Limb Pain.

It’s bad enough to get limb pain, but to suffer pain in a limb that’s no longer there adds insult to injury! This isn’t helped by the fact that so little is understood about this strange and unpleasant phenomenon. We’ve been made aware of some fascinating treatments for it over the years but no definitive cure. However, there is hope; Finding Your Feet, the Scottish registered amputee charity, has been working with Flippin’ Pain to bring more understanding and help to amputees who suffer from Phantom Limb Pain.

Flippin’ Pain™ is a public health campaign with a clear goal: to change the way we think about, talk about and treat persistent pain

Flippin’  your understanding of pain could change the lives of you and your loved ones forever.

ScotGovt have employed Flippin Pain to try to reduce the number of cases of chronic consistent pain.  Finding Your Feet has been adapting their course with them specifically to suit Phantom Limb Pain and has now arranged this seminar to include a panel of medical folks and Amputees for discussion and debate.
The Phantom Limb Pain Live Webinar will also be recorded for later publication and Finding Your Feet would like to offer it out to the whole amputee community. It will be free to all so, if you do suffer from Phantom Limb Pain, it would be well worth checking out.
The Webinar will take place on the 6th October from 6.00 – 7.30pm and will feature an expert panel led by Professor Cormac Ryan.
If you’d like to reserve your place or get more information, you will find contact and other links at the bottom of this post.

Phantom Limb Pain Live Webinar


Links: (will open in new tabs)

Request for Amputees to Participate in Research That Could Reduce Phantom Limb Pain

Dr Logan Wade, a researcher from the University of Bath, has contacted us regarding research into phantom limb pain. Dr Wade and his team have just been granted funding and ethical approval to conduct two workshops surrounding this horrible affliction and the applications of Virtual Reality (VR) to reduce the associated pain and discomfort.

They are now looking for volunteer amputees to participate in a research study. 

VR technology has shown promising results at reducing phantom limb pain in amputee case studies. However, these interventions have tended to use off-the-shelf products which can be expensive and inadequately adapted for use by amputees. Therefore, there is a need to create immersive therapy that is designed by amputees for use by amputees. In this research study, participants will attend a half day workshop in either the Southwest or London area to discuss how phantom limb pain impacts their daily life and the application of VR to reduce this pain. At the moment we do not have set dates for either the London or Southwest workshops because we are somewhat flexible and will try to work out the best dates that suite the participants. However, we are hoping to conduct the workshops around June/July. Dr Logan Wade, Researcher, University of Bath

If you’d like to take part in valuable research that could potentially be life changing for those who suffer from phantom limb pain, then please read the details on the Flyer below (a pdf version can be downloaded using the link below the post) and use the contact details given if you’d like more information or to apply. 


Links: (will open in new tabs)

Dr Logan Wade Contact details:

Flyer pdf: /wp-content/uploads/2020/02/DrLWPhantomPain.pdf

 

Please Help With New Research into Phantom Limb Pain

Jonas Gravli has contacted us as he is researching an innovative way to help people with phantom limb pain and would like volunteers to take part in his online survey. This should only take 15 minutes at the most and could ultimately be of help to people suffering the horrors of phantom limb pain. Please give 15 minutes of your time to support Jonas’s work.

I hope to use this to contribute towards the improvement of phantom limb pain management. Jonas Gravli


Experiencing phantom limb pain?

 Hi, I am Jonas Gravli. I have a Bachelor of Science in Psychology and I am currently completing my Masters degree in Health Psychology, with the University of Nottingham, England. I am personally interested in improving the treatment options available for people who experience post-amputation pain, particularly phantom limb pain. I am posting here to ask you about the opportunity to complete an online survey I am carrying out for my dissertation. This survey is measuring aspects of your use of online groups (such as this one) and how that could affect your experience of phantom limb pain and your daily life. However, we require that you are above the age of 18 to participate.

Previous studies have demonstrated that participating in an online support group can improve the way individuals with other forms of chronic pain manage their conditions. No such studies have been undertaken for phantom limb pain. Despite the negative impact phantom limb pain can have on one’s life. As such, I am interested in finding out whether participating in online support groups could improve the way individuals experiencing phantom limb pain manage their condition.

I would greatly appreciate it if you would take the time to complete an online survey for us. If you experience phantom limb pain to any degree. It should only take 15 minutes at the most. As a mean to demonstrate my gratitude, we will be giving away five £20 (equivalent to $26 American) online gift vouchers (of your choice) to five random participants.
Further information and access will be provided to you through this link: https://nottingham.onlinesurveys.ac.uk/online-phantom-limb-pain-version30

Your participation is very important to us and we still require more participants. As there will be no study without it. I would therefore like to thank you for considering this request. If you follow the link above, I have left you with my contact information () to answer any questions you might have after reading the information provided. And further information about the prize draw. Again, I would like to thank you for considering participating in the study. I hope to use this to contribute towards the improvement of phantom limb pain management.


Links: (will open in new tabs)